Wednesday, December 31, 2008
Earlier this year, the first book in the series, "Reflections on Doctors: Nurses' Stories About Physicians and Surgeons", was released to great fanfare, and I was honored to provide a chapter for that collection, as well as to appear on a number of radio broadcasts promoting its publication. And although I was not a contributor to the second book in the series, I also heartily recommend "Meditations on Hope: Nurses' Stories About Motivation and Inspiration", released this past November.
I am humbled by my inclusion in this new series ("Kaplan Voices: Nurses") by Kaplan Publishing, and would like to express my heartfelt gratitude for this very satisfying opportunity.
Tuesday, December 30, 2008
The report, based on the most recent census data available, reveals that 54.4 million Americans (18.7 % of the population) are currently classified as disabled, and 35 million (12%) of Americans qualify as severely disabled. Both percentages have risen since the last census, and the numbers are most likely expected to rise again in subsequent studies of a significantly aging American population.
In terms of needing assistance with Activities of Daily Living (ADLs) or Instrumental Activities of Daily Living (IADLs), 11 million people (4.1 % of the population) over the age of 6 need assistance with such activities. When examining sensory impairments, 7.8 million people are not able to hear a normal conversation, 1 million are unable to hear at all, 7.8 million people cannot read normal newspaper print, and 1.8 million report not being able to see whatsoever.
When assessing mental, cognitive or emotional function, 16 million Americans are apparently affected, with approximately 8.4 million of those individuals reporting that their condition can prohibit or limit their ability to perform any number of ADLs or IADLs.
Economically speaking, 27% of disabled Americans between the ages of 25 and 64 reportedly live in poverty, compared to 9% who are not disabled in any way. For people with a severe disability, median monthly income was $1,458, whereas it was $2,250 for those with a non-severe disability and $2,539 for those with no disability at all.
In children, 13% (4.7 million) aged 6 to 14 are disabled, the most common difficulty being the completion of schoolwork.
As an individual living with Multiple Chemical Sensitivity, a condition recognized and protected by The Americans with Disabilities Act, I am---as usual---disappointed that environmental illnesses (including MCS and Gulf War Syndrome) have once again been left out of the data. While it is true that individuals with environmentally- or chemically-induced illnesses do indeed experience cognitive, emotional and physical disabilities as effects of their condition, it would be monumentally helpful for studies as relatively exhaustive as the U.S. Census to allow for some extrapolation of data vis-a-vis this constellation of woefully overlooked conditions. And while individuals with MCS and related conditions do not necessarily use wheelchairs, canes, and walkers, we do use oxygen, protective masks and other devices in order to function in the face of our condition. Perhaps, some day, these illnesses will receive their due, and be formally included in such reviews of the disabled and chronically ill.
That said, I am still impressed with the breadth and scope of the census data. The economic disparities reveal what most of us already know: that Americans with disabilities are astronomically more likely to live in poverty than their non-disabled counterparts. It is also extremely helpful and revealing to glean such minute detail about the day to day struggles of the disabled in this country. Regardless of my disappointment about the irksome ignorance of so many about environmental and chemical disabilities (a wrong I am determined to somehow right), this census data is a quantum leap forward and should provide grist for many in the disability rights arena.
The disabled are a large portion of the American voting public, and a vocal percentage of the American disabled are socially progressive and politically active. I hope that the data collected, collated, extrapolated and published by the Census Bureau will be used in ways that greatly benefit the subjects of this study, and that the voices of those who work for disability rights are heard loud and clear by the hopeful new administration assuming power in just under a month. The lives of poverty-stricken disabled Americans deserve to be brought out into the open, and the census data make clear that we still have a long way to go. Be that as it may, our government is indeed paying attention to the disabled members of the population, and for that I am excessively grateful.
Saturday, December 27, 2008
According to PFCD, 45% of Americans live with a chronic illness; poorly controlled asthma sends 5,000 people to the ER every day; and obesity rates of American teenagers has tripled in the last 20 years.
Perusing the PFCD website, it's obvious that there is a great deal of optimism being verbalized vis-a-vis the opportunity that Barack Obama and his administration have in terms of addressing chronic illness and health care reform. Improvement in the management of chronic illness is seen as a clearly bipartisan issue by many in the know, and a number of members of Congress are apparently already preparing policies vis-a-vis these issues in advance of Mr. Obama's inauguration and first 100 days of governance.
In terms of technological advances, there are many policy-makers and consumers who are calling for a national Electronic Medical Record (EMR) that will streamline information, track prescription drug use and medical visits, as well as allow more continuity of care. This type of system would also allow for easy access to immunization records, would simplify facility-to-facility patient transfers, and facilitate care of patients who have moved or who need health care while traveling. Furthermore, chronic disease care could also be greatly enhanced by such centralized record-keeping, providing crucial financial and medical data about the overall state of American health---and its medical management. While pundits (justifiably) worry that a government-run EMR could raise Orwellian privacy concerns, perhaps some type of third-party oversight could assuage such fears as the project moves ahead.
Obviously, something needs to be done to address the state of disarray in which we find health care in America. We are less healthy, more obese, taking more chronic medications, and experiencing greater levels of stress than ever before. Sadly, 40 million of us are still uninsured (a pathetic statistic which I am apt to belabor ad nauseum here on Digital Doorway), and the percentage of us suffering from chronic conditions such as diabetes and heart disease is currently rising.
As 2009 beckons, the Obama-Biden transition team is revving its engines and preparing for an all-out attack on the American economy, including the economics of health care. In my virtual peregrinations, I am seeing that a great deal of optimism is being expressed vis-a-vis the future of health care and chronic illness management in the United States. As the economy inevitably rises from the ashes and financial stability returns to the markets, many feel that the health care
infrastructure will also revive itself with government-funded resources aimed at curbing chronic illness and improving public health. As a newly-minted Public Health Nurse, I am quietly joining that chorus of optimism, and will do my best (from my lowly municipal position) to support those valuable and forward-thinking efforts.
Wednesday, December 24, 2008
Sunday, December 21, 2008
When one generally thinks of public health, one thinks of communicable and infectious diseases, vaccinations, disease surveillance, and epidemiology. But I am learning that access to health care, food insecurity, and access to adequate housing can all be seen under the umbrella of public health, especially when looking at these issues through a social justice lens.
In addition to our social justice grant, our health department also boasts a Cambodian outreach worker who is responsible for outreach to the Cambodian refugee community in our area, a sizeable cohort which has varying levels of need vis-a-vis health care access and other social issues.
For American-born citizens, refugees and immigrants alike, free and equal access to adequate health care is indeed a privilege in this country, but it is a privilege that many of us prefer to view as a basic human right.
Along with housing, employment and education, my progressive heart wants to see every American have free and unfettered access to as much education as his or her heart desires; comfortable and affordable housing; gainful employment; sufficient quality and quantity of food; and high-quality and accessible health care. Call me a bleeding heart, but my personal vision of social justice includes what I see as essential components of "life, liberty, and the pursuit of happiness."
In terms of my work as a Public Health Nurse, I want to remind myself that the "public" aspect of my job entails my responsibility to the public, the people who live within the geographic area of my jurisdiction. The Human Rights Commission in our town is very active, and I see part of my duty as the PHN to reach out to this group (and others) who spend their time assuaging the suffering of our homeless, hungry, and uninsured.
Aside from the nuts and bolts (and syringes) of my work, I want to delve into the area of social justice wholeheartedly. There is nothing more worth fighting for in my book, so why not start right here at home?
Saturday, December 20, 2008
Here in the United States, the use of soup kitchens, food pantries, and other emergency assistance has skyrocketed, and applications to Medicaid continue to climb. An astronomical number of individuals are truly wondering how they will put food on the table, gas in their tanks, or heat in their homes, and those individuals are often living in households with members who are children, elderly, or disabled.
Government figures show that unemployment applications are increasing exponentially, and although Congress has passed legislation to extend unemployment benefits, we all know that the end of such assistance does not always coincide with the procurement of new employment opportunities. As the economic slowdown continues, jobs are being slashed daily in a variety of sectors, the consequence being even more people fiercely competing for a dwindling supply of jobs, many of which offer less-than-stellar compensation frequently without health benefits.
With Christmas and Hannukah upon us, bargain hunters scour the shelves for affordable gifts for friends and family, and the ingredients for holiday meals and celebrations are sought through every frugal means necessary. Granted, we all need to celebrate, but this year has brought a level of economic uncertainty not seen in many decades, ostensibly throwing a wet blanket over many families' ability to partake of the holiday season as they might in a more robust financial climate.
But what of those who were already struggling? What about those who have been visiting soup kitchens and food pantries all along? As more and more jobs are slashed and as individuals use up their unemployment benefits, how will we as a society care for those who cannot make ends meet? And as the facilities who support those struggling families see their own operation costs rise amidst an increase in utilization, how will the needy be cared for?
These are uncertain times, and as I have pointed out on Digital Doorway before, food insecurity is real, and the number of families unable to provide for their children has been increasing like never before.
I offer no solutions here, and I have no grand plan or scheme to short-circuit this calculus of need and insecurity. I only know that I awoke at 4am this morning thinking about the millions of people---in this country alone---who cannot honestly say how they will feed their families this week, let alone provide the makings of a holiday celebration.
With the New Year around the corner, there is always desire for a fresh start and an infusion of hope. On January 20th, an historic event of enormous proportions will take place in Washington, D.C., and all eyes will be on the new President and his administration's ability to turn the economy around as soon as possible. And while I understand the need for inaugural celebrations---especially due to the historic nature of this president's unprecedented accomplishment---I cringe when I think of the millions of dollars that will be spent on dinners, formal balls, and lavish parties as millions of Americans wander the streets in search of low-paying jobs and food pantry handouts. Yes, we all need to celebrate, but that astronomically expensive celebration does indeed give me pause as I ponder the plight of those without the means to even feed their families.
My wife and I are both very blessed to have recently found satisfying and relatively well-paying work right in our own town. No longer commuting forty miles per day, we are among the lucky few who have new jobs, short commutes, and robust benefit packages. We realize how very fortunate we are to be in our current position at a time when so many others have experienced the opposite economic reality. We do not take our situation for granted and fully recognize our blessings.
Perhaps my recent luck in finding gainful employment is what has me awake at 4am, thinking about those who have not been so lucky. Admittedly, we will have no problem putting food on the table this holiday season, and while we are indeed being frugal in terms of gifts for family and friends, we are fully cognizant of the fact that buying those gifts is not a significant burden, even as we write checks to our favorite local, national and international charities. Having the economic means to care for ourselves and give to others is not something we take lightly, and we recognize that it is our ethical responsibility to donate to worthy causes at a time when our donations mean so much.
I am saddened by the current plight of millions of deserving individuals and families, and even as I watch the holiday season unfold, my thoughts turn to those who may feel less than celebratory. These are times requiring a great deal of thoughtful reflection, selflessness and compassion, and I hope that the suffering of so many amidst this global crisis will soon be alleviated. In whatever way I can, I choose to be a part of the solution, and I invite you, dear Reader, to do the same.
Wednesday, December 17, 2008
From what I can gather, emergency preparedness operates on several levels, each of which offers its own set of challenges:
For individuals and families, being prepared for emergencies entails family disaster plans, food, water, communication devices such as hand-cranked or battery-operated radios, first aid, flashlights and other equipment, sanitation and hygiene concerns, pets, important family papers, bedding, medications, clothing, as well as the needs of children, the elderly, and the disabled. For a comprehensive list of what a household Basic Emergency Kit should contain, click here.
For neighborhoods, emergency preparedness means identifying vulnerable neighbors, making plans for their care in the event of an emergency, and appointing individuals or groups of individuals to share responsibility for those identified members of the community.
On the municipal level, preparations for disasters, severe weather, terrorism, power outages and public health emergencies obviously encompass the individuals, families and neighborhoods which make up a municipality. However, municipal emergency preparedness also takes into account the need to provide emergency shelter, mass dispensation of medications of vaccinations in the case of epidemics or pandemics, as well as support for potentially overwhelmed first responders.
While the current wave of emergency preparedness was indeed galvanized by the terrorist attacks of 2001, the United States and other countries have seen how varying levels of preparedness on the local, state, and federal level can fail or succeed in the face of natural disasters. Despite the efforts of many, it is painfully clear that the federal response to Hurricane Katrina caused enormous (and altogether preventable) suffering on the part of residents of the American Gulf Coast. The Bush Administration and FEMA failed miserably in their collective response to Katrina, and many people died unnecessarily as a result of systemic problems and governmental hubris.
Although some may still fear terrorist attacks in the form of biological weapons and bombings on American soil, I feel that it is far more likely that our level of preparedness for the unexpected will be tested in the form of natural disasters (hurricanes, tornadoes, floods and earthquakes) and outbreaks of disease (such as pandemic influenza). The recent ice storms in Massachusetts and wild fires in California are two examples of how coordinated efforts on the part of local, state and federal entities are crucial to disaster response, rescue and recovery.
Now, my personal task is to take the helm of my local branch of the Medical Reserve Corps, connect with local, regional and state emergency preparedness officials, and put together a comprehensive preparedness plan for our town of approximately 40,000 residents. Steep learning curve is right, and I will certainly be blogging about my progress as I move forward with this and my other new public health duties, so please stay tuned.
Tuesday, December 16, 2008
In Cleveland, Ohio, Dr. Maria Siemionow and a enormous team of specialists have successfully completed just such a surgery, far surpassing the partial face transplants previously performed in France and China.
Performed not to extend life but to enhance quality of life, these types of surgeries carry a very high risk of rejection, a dangerous outcome that many ethicists feel may not warrant such extreme measures.
On the other side of the ethical debate, it is argued that those with major birth defects or other forms of disfigurement deserve a chance to live a normal life with near-normal facial physiognomy and expressive ability, despite the need for life-long immune suppressing medications and the risk of catastrophic rejection.
Meanwhile, some ethicists opine that facial transplant recipients should have the option of assisted suicide in the case of total rejection and transplant failure, an outcome that could lead to complete inability to breathe, eat or otherwise function normally. The removal of a rejected facial graft would leave a post-surgical patient with extreme disfigurement, risk of dangerous secondary infection, and potentially worse quality of life than prior to undergoing the surgery.
Advances in medicine and science often lead to ethical concerns that must be rigorously discussed and debated by interdisciplinary teams of surgeons, ethicists, nurses, laypersons, clergy, and other concerned individuals and groups. Decades ago, heart transplants and liver transplants sent shockwaves throughout the world as the ramifications of such advances became clear. Life support technologies, blood transfusions and advanced pharmacology have all become part and parcel of the medical world, sustaining and prolonging life while often simultaneously increasing quality of life as well.
Now, hand and face transplants once again push the envelope of what some feel is ethically and morally responsible as humans continue to dabble in the more esoteric reaches of medicine and surgery. And as much as brain or total head transplants may still seem like science fiction, I have no doubt that such emotionally charged and ethically challenging surgical events are most likely closer than we think to being reality.
As the 21st century continues to unfold, bioethics and the future of medical intervention are certain to challenge us as the edges of our comfort are once again breached. I am interested to see how the newest facial transplant recipient recovers from her surgery. I am equally interested in observing how the world continues to react and recover from the shock of yet another momentous milestone and its ethical aftermath.
Sunday, December 14, 2008
Entitled "Public Health Survival: Leadership in a Falling Market," the webcast will be hosted by the Gillings School of Global Public Health at UNC, and will include a number of expert panelists.
The times for all U.S. time zones are thus:
2:00 - 3:00 pm Eastern Time
1:00 - 2:00 pm Central Time
12:00 - 1:00 pm Mountain Time
11:00 am - 12:00 pm Pacific Time
To access live web coverage, please click here for a link to the webcast homepage, where you will also find a downloadable pdf file of the webcast slides, links to articles, and organizations of interest.
Saturday, December 13, 2008
That early assault sent me once to the emergency room with the worst chest pain of my life (on the very night that all of the symptoms began), and three times to the nurse practitioner to beg for a bronchodilator and codeine cough syrup. Eighteen days later, I'm struggling with asthmatic bronchitis and am now using inhaled steroids to keep the coughing at bay. As the sun goes down, my lungs seem to naturally fill with congestion, and my level of fatigue is enormous. While I indeed miss exercising and working out, the mere thought of doing twenty laps at the local pool makes me swoon with delirium.
According to the Centers for Disease Control and Prevention website, there have been only 507 positive influenza tests in all of the United States so far this season. This means that only 1.6% of the more than 30,000 specimens submitted for testing so far have actually been positive for influenza. Concurrently, Google's Flu Trends website states quite firmly that, at least in the U.S., influenza activity is quite low, essentially agreeing with the CDC's current data.
No matter the numbers, and no matter how little flu activity is truly being seen out there in the world, those of us who are sure we've already been stricken feel that our Personal Statistic of Significant Suffering (PSSS) is certainly worthy of notice. For myself, I have suffered enough for several winters' worth of illness, and this lingering bronchitis must, on some level, earn me a flu season medal of honor.
For other flu sufferers out there---if you're reading this---one of your own feels your pain, and my wishes to you for a speedy recovery and a subsequently healthy and prosperous winter. And for those of you who have as yet escaped illness, may you continue to be well, and enjoy the holidays and New Year in well-deserved good health.
Stay tuned for more updates on nationwide flu activity as this new Public Health Nurse recovers from his own personal bout of wintry illness and doldrums.
Saturday, December 06, 2008
The Obama-Biden web page discusses health care in this manner:
"On health care reform, the American people are too often offered two extremes -- government-run health care with higher taxes or letting the insurance companies operate without rules. Barack Obama and Joe Biden believe both of these extremes are wrong, and that’s why they’ve proposed a plan that strengthens employer coverage, makes insurance companies accountable and ensures patient choice of doctor and care without government interference.
"The Obama-Biden plan provides affordable, accessible health care for all Americans, builds on the existing health care system, and uses existing providers, doctors, and plans. Under the Obama-Biden plan, patients will be able to make health care decisions with their doctors, instead of being blocked by insurance company bureaucrats.
"Under the plan, if you like your current health insurance, nothing changes, except your costs will go down by as much as $2,500 per year. If you don’t have health insurance, you will have a choice of new, affordable health insurance options."
Allegedly, the plan would:
- Require insurance companies to cover pre-existing conditions so all Americans regardless of their health status or history can get comprehensive benefits at fair and stable premiums.
- Create a new Small Business Health Tax Credit to help small businesses provide affordable health insurance to their employees.
- Lower costs for businesses by covering a portion of the catastrophic health costs they pay in return for lower premiums for employees.
- Prevent insurers from overcharging doctors for their malpractice insurance and invest in proven strategies to reduce preventable medical errors.
- Make employer contributions more fair by requiring large employers that do not offer coverage or make a meaningful contribution to the cost of quality health coverage for their employees to contribute a percentage of payroll toward the costs of their employees' health care.
- Establish a National Health Insurance Exchange with a range of private insurance options as well as a new public plan based on benefits available to members of Congress that will allow individuals and small businesses to buy affordable health coverage.
- Ensure everyone who needs it will receive a tax credit for their premiums.
- Lower drug costs by allowing the importation of safe medicines from other developed countries, increasing the use of generic drugs in public programs, and taking on drug companies that block cheaper generic medicines from the market.
- Require hospitals to collect and report health care cost and quality data.
- Reduce the costs of catastrophic illnesses for employers and their employees.
- Reform the insurance market to increase competition by taking on anticompetitive activity that drives up prices without improving quality of care.
In terms of the plan, I would also like to see the following:
- details regarding a more robust national plan of preventive health care initiatives
- sufficient funding for public health initiatives
- sufficient funding for emergency preparedness and the national Medical Reserve Corps
- a comprehensive plan to decrease the nursing shortage, including grants and loan forgiveness
- a plan to assuage the nationwide shortage of primary care physicians
- a plan to create an Office of the National Nurse
Despite my reservations, doubts, and dubiousness, it is indeed exciting to see a new administration apparently dedicated to transparency, as well as the active participation of all Americans in the process of change that is underway.
Meanwhile, I am willing to suspend my disbelief, listen to the conversation, join in on the conversation when I have something useful to say, and watch as the story unfolds. These are exciting and nerve-wracking times, and I do indeed hope that the change that has been promised will indeed be delivered. Until that time, patience is one virtue we will all need to put into practice.
Friday, December 05, 2008
With an increasing number of young adults in their 20s and 30s living with chronic health conditions, health insurance and prescription drug coverage are no longer just issues for middle-aged and older adults. The survey further revealed that young adults are considerably less savvy when it comes to finding ways to save money on healthcare.
Other recent reports show that the prevalance of mental illness among young adults is significantly high, but only a small percentage ever actually seek treatment. With potentially 50% of young college-age adults meeting criteria for substance abuse disorders, personality disorders or other conditions, it is disconcerting that less than 25% are under active medical care.
If the lack of health insurance, the prohibitive costs of prescription medications, or exponentially increasing college tuition is keeping young adults from seeking medical or psychiatric treatment at a very vulnerable time of development and maturation, important outreach and motivational education needs to be set in motion in order to counterbalance such a trend. Whereas older adults might make healthcare expenses more of a personal economic priority in times of fiscal stress, perhaps young adults are less likely to eschew social outings, travel, and other activities in order to save money to cover their healthcare costs. This trend is worrisome since untended health maintenance issues early in adulthood can often come back to haunt the unsuspecting person in middle age.
I am not at all suggesting that young adults are categorically frivolous or laissez-faire about their health, but studies do clearly suggest that they are less likely to understand how to manipulate the economic system to their personal advantage vis-a-vis healthcare expenses. Additionally, having once been a young adult myself, health is generally not as great a priority when one is twenty-something as when one crosses the threshold into middle-age and the first half of one's life comes to a resounding close.
Universal healthcare and free higher education would most likely go a long way towards easing the economic strain on today's young adults, but I would be interested to see a study comparing the healthcare-seeking habits of European young adults (who already have free medical care and higher education) and their American counterparts. It would be revealing to ascertain if it is indeed the cost of healthcare that prevents young adults from seeking care, or if it is more of a developmental issue which is part and parcel of the maturation process.
While considering the underlying causes of the phenomena revealed by the studies mentioned above, it is important to consider what social and economic interventions might increase access to medical care for this important population, as well as what forms of education and outreach might prove to be positively motivational to that desired end. Increased access to affordable healthcare is certainly a very good first step, and while students attending college are required by law to have health insurance, young adults who choose to not go to college---or who simply cannot afford it---are left with few economically viable options once they can no longer be covered under their parents' policies.
Young adults are our future, and it is in our best collective interest to make sure that they receive the necessary preventive healthcare that can detect chronic disease---or even the potential for such disease---long before any lasting damage is done. Healthcare should be affordable, accessible, and understandable for our young adults, and in these hard economic times, too many young people may see healthcare as a luxury that they simply cannot afford. I hope that the new administration in Washington will decrease the costs of both healthcare and higher education, ease the burden on American young adults, and simultaneously educate this population about the crucial importance of detecting chronic illness before it starts to take its toll.
As the father of a young man in his twenties, I have a vested interest in his stellar generation reaching their productive middle-age with good health, economic security, and the means to live a long, happy, healthy and satisfying life.
Thursday, December 04, 2008
Now, the United States Justice Department has weighed in for the third time in three years to clearly state that the Texan system of care for the institutionalized mentally disabled is decades behind the rest of the country and consistently violates consumers' constitutional rights. Unearthed documents detail beatings, sexual assaults, neglect, and possible allegations of homicide. And according to the Associated Press, more than 800 employees have been fired since 2000 due to reports of abuse, exploitation and neglect.
Called "the institution capital of America", Texas has been accused of warehousing consumers at a rate six times above the national average.
The 62-page downloadable report by the Justice Department details the observed abuses, poor admissions process, lack of knowledge of community services, poor rehabilitation services, and a high rate of injury among residents. Further supporting the evidence that the Texan "state schools" are decades behind the times, the use of straight jackets and other restraints are a common part of residents' behavior management plans, a practice that has been out of fashion (and deemed unconstitutional) for decades.
With its astronomically high rate of (racially skewed) incarceration of the general population and a widely criticized history of aggressive (and racially skewed) capital punishment, Texas obviously needs to do some soul-searching. The Texan system of "state schools" must be immediately dismantled, and a modern and constitutional system of community-based services for the mentally disabled must be put into place as soon as possible. The state government may want to consider creating a trust fund to benefit those who have already been abused and damaged by such egregious and nefarious treatment, and it would not surprise me if a massive class action lawsuit---and criminal proceedings---begin to rise to the surface as the dust settles on this sad moment in American and Texan history.
With every crisis comes opportunity, and Texas now faces a moment wherein it can turn the tables, turn history on its head, and create the most progressive and forward-looking system of care for the mentally disabled in the country. Such a feat will take political will of untold proportions, and it remains to be seen if Governor Perry will step up to the plate. If he has read the report sent to him by the Department of Justice, I hope he did so with tears in his eyes and pain in his heart. The human beings who have been unjustly abused in the Texas state schools are brothers, sisters, sons, daughters, grandparents, mothers and fathers. How we care for our most vulnerable citizens is a true test of our humanity, and on that scorecard, Texas has certainly failed miserably.
Monday, December 01, 2008
With 33 million people living with HIV worldwide, World AIDS Day is now in its 21st year and was actually the first international health day commemorating a particular disease. While World AIDS Day in the UK has chosen the theme of "Respect and Protect" for this year, the theme chosen by the global movement appears to be "Leadership", based on their website.
Regardless of thematics, everyone involved seems to agree that there are certain aspects of the fight that necessitate further concerted action on a global scale as governments around the world pledged today to increase funding for treatment, to fight discrimination, and to increase testing.
And in China, where up to 700,000 individuals are said to be infected but only 260,000 are officially recognized as having the disease, the fight against stigma is an uphill battle only newly begun.
The global effort is still in full swing, and it seems to receive a needed boost every year on December 1st. Thank you to all of the individuals and organizations that keep that torch burning year-round.
Counting our blessings, we indeed realize that, unlike the majority of the other 38 million uninsured Americans waking up this morning, our uninsured status is, in fact, temporary. A month from now, as we ring in the New Year, we will also ring in the renewed security that paying monthly health insurance premiums can bring. Our privilege is not lost on us, but having just been to the emergency room on Thanksgiving Day, I am given pause to remember that life and illness do indeed sometimes happen on their own schedule. But like I've said before, middle class privilege is something we do not take for granted, and our very survival is in no way threatened by this unfortunate but temporary turn of events.
Meanwhile, my incredulous friends in Canada and Europe wonder how such a "powerful" country can leave so many of its citizens in the lurch, many actually going bankrupt when they cannot pay their medical bills. My response is that the United States' free market system coupled with an ingrained Puritan work ethic and "pick-yourself-up-by-your-boot-straps" cowboy mystique leads many mainstream Americans to think of themselves rather than of others, assuming that those who "have not" probably don't deserve it anyway. Ronald Reagan's evisceration of Public Assistance---further decimated by Bill Clinton in the 90's---painted "Welfare Moms" as deadbeats who purportedly birthed children just to get on the dole. We were all expected to make it on our own, and those who didn't were expected to eat our crumbs.
If I sound cynical, it's because there has been a great deal to be cynical about in the last decade of American life. With the economy in shambles, healthcare on the rocks, two never-ending wars, and poverty and hunger on the rise, some healthy cynicism is indeed in order.
So, as the Obama administration revs its engines, I wait patiently along with my fellow citizens, hoping for some change, but admittedly less starry-eyed than many of my brethren. I honestly expect little to change in the next year in terms of the machinations of American healthcare economics, although I do hold out hope that the ranks of the uninsured will somehow be decreased as rapidly as possible. Changing such an entrenched system will not be easy, and some say it is truly impossible with so many economic and political toes to be stepped on. Well, the poor, uninsured and hungry in this country have been repeatedly stepped on throughout the decades, so if the insurance industry cries "foul" as it suffocates, let's simply call it just desserts.
This next month of "insurancelessness" does certainly give me a lot of food for thought. I am grateful that this chapter will be short-lived, but I am all too well aware that, for many others, it is a chapter that seems to never end.
Saturday, November 29, 2008
Thursday, November 27, 2008
As this wave of need crashes against the American system of emergency food distribution, those very agencies are already overwhelmed as requests for assistance continue to rise. Meanwhile, corporate and individual giving has declined as Americans who might normally donate to their favorite charities are themselves tightening their belts and giving less. Today's news reports demonstrate that some food banks and soup kitchens are sadly in a position wherein needy families are actually being turned away this holiday season.
Currently, 38 million Americans are considered "food insecure". Housing costs and fuel prices are a major factor for many families when it comes to affording basic food needs, although fuel has indeed taken a plunge to record lows in recent weeks (perhaps a temporary economic change). And when such families are eligible to receive food stamps from the government, the average amount allotted is approximately $4.00 per person per day (basically $1.33 per meal). How many of us would be challenged to feed our family a healthy and nutritious meal for $1.33 per person?
While hunger was once seen as a problem of the inner city and rural areas, one-third of poor Americans now live in the suburbs, and hunger in suburban areas is indeed growing while still being largely a hidden phenomenon.
Many of us are painfully aware that a significant number of personal bankruptcies in this country are due to the rising cost of healthcare, and as more and more Americans lose their health insurance after being laid off from work, they will indeed often be faced with a choice between food and healthcare expenses, a particuarly difficult dilemma, especially when children are involved.
Even as millions of Americans sit down to glorious Thanksgiving feasts this afternoon and evening, it is imperative for all of us to realize that there are more than 30 million Americans who face very serious food insecurity on a daily basis. For these individuals and families, even the idea of a Thanksgiving meal might seem like a dream. Perhaps all of us lucky enough to have kitchens filled with nutritious food should consider how we might ourselves contribute to making such dreams more likely to come true.
Wednesday, November 26, 2008
Published in "The Lancet", the study is indeed intriguing, and the World Health Organization promises to examine the findings more closely. The model includes voluntary testing of every citizen, with AIDS drugs prescribed for any patient testing positive for the HIV virus, regardless of whether they are symptomatic or not. (Current practices often dictate withholding treatment until a patient has symptoms, or when their T-cells---immune cells that fight opportunistic infection---fall below a certain level.)
At this time, the price tag for such a strategy is estimated at $3.4 billion per year initially, with costs decreasing over time.
With approximately 33 million people infected with HIV worldwide, increased testing and treatment would, of course, cost money. However, an already overwhelmed healthcare infrastructure in places like sub-Saharan Africa (where HIV rates are still rising) would pose significant logistical challenges. (For an interesting map detailing the number of HIV cases and AIDS deaths worldwide, please click here.) How those countries would be financially and logistically supported by the global community in implementing such a strategy remains to be seen.
From a human rights perspective, critics of such an approach feel that universal testing and treatment might infringe on individual rights. And as many patients with HIV and AIDS already know, taking antiretrovirals is not easy, and side effects such as liver toxicity or failure, heart attacks and kidney failure are all relatively common.
Such studies and models for a plausible expansion of the global effort against HIV and AIDS are laudable, and perhaps the AIDS epidemic will indeed be significantly curtailed in the decades to come. Perhaps the greatest gift that we could give to the children of the 22nd century would be to eradicate HIV and AIDS from the face of the earth in the current century, a goal that has generally been seen as virtually impossible until now.
Some nay-sayers may feel that we're getting ahead of ourselves as infection rates steadily rise in Russia and other countries, but there are scientists and researchers around the globe seeing the possibilities of near-complete eradication. One can only hope that plausibility will eventually give way to reality, and someday we will truly look back on the epidemic as a disturbing yet finite piece of post-modern medical and societal history.
Monday, November 24, 2008
Public health nursing has a long and illustrious history which I will not illustrate here, but in terms of my new position, there are a number of things for which I am directly responsible:
-Tuberculosis case management: I closely monitor and follow any cases of active or latent tuberculosis in my community, assuring that patients take their medications as prescribed and follow up with the regional TB clinic as required.
-Emergency preparedness: it is my job to actually make sure that our town has protocols and plans in place for emergency preparedness, whether it be for natural disasters, terrorist attacks, pandemic illness, or other public health emergencies. I will cooperate with other regional agencies and serve as coordinator of our local Medical Reserve Corps.
-Immunization clinics: I will hold monthly immunization clinics for immigrants and other citizens in need of urgent immunizations. Influenza clinics are also an important part of our work in the late Autumn and early Winter.
-Infectious disease surveillance and investigation: I am responsible to track, report, and investigate infectious and communicable diseases in our community.
-Resources and referrals: I will provide the general public with resources, referrals and advice vis-a-vis medical issues, psychosocial issues, and other needs as they arise.
-Employee wellness: on some level, I am supposed to provide employee wellness resources for employees of our town. I'm not sure what this is supposed to look like, and only so much can happen in thirty hours each week. Still, I see this as a potentially interesting aspect of the job if there's any time to actually do it.
There is so much to learn and so much to know. Infectious disease surveillance in general is an enormous area of expertise and I feel ill-prepared to take it on.
The learning curve is indeed quite steep, but in exchange for my own sunny office, a great cafe next door, and excellent health insurance, I think I made the right choice.
Saturday, November 22, 2008
After ten months of being a free agent, consultant, and general slacker, having a job to responsibly report to four days a week is indeed a wake-up call. While consulting and working per diem jobs has allowed me a great deal of flexibility and self-determination, the need for high-quality health insurance and a more steady income have also reared their heads. Thus, my decision is propelled by economic need as well as the realization that this will certainly be an interesting and growthful career move on many levels.
As a Public Health Nurse for a town of approximately 40,000 people, I will be responsible for emergency preparedness (including the management of the local Medical Reserve Corps), infectious disease surveillance and reporting, tuberculosis case management, a monthly immunization clinic, influenza clinics each fall and winter, fielding questions and calls from citizens and town employees, and other important responsibilities.
I am honestly slightly overwhelmed as I realize the steep learning curve involved in this undertaking, but I also realize that my desire to work for Partners in Health, Doctors Without Borders, or a similar organization in the future will be even more likely with significant public health experience under my belt. While public health is not necessarily hands-on nursing, it is a crucial part of the healthcare infrastructure of the country, and many of my new skills will certainly be transferable to other countries and societies.
Stay tuned for developments as I dig in to my new position, and I surmise that issues of public health will become an even more intrinsic part of the regular conversation here on Digital Doorway.
Friday, November 21, 2008
If you are so moved, please pay a periodic visit to my newest blog---Fiction, Prose & Ephemera---a collection of fiction and poetry, some of which are works in progress, and others that are more or less complete. It is a project whose time has come.
Thursday, November 20, 2008
While the current Chief Nurse Officer (CNO) of the United States serves as Assistant Surgeon General, many of us feel strongly that it is time for nurses to be taken seriously as key players in the development of far-reaching preventive measures to improve the health and well-being of the American people. Rather than have the CNO remain in a subservient role to the Surgeon General, giving the National Nurse a prominent, autonomous and equal part in the government's efforts vis-a-vis preventive healthcare would send a clear message that the nursing profession has finally received the recognition it deserves.
Nursing has a great deal to offer to the American healthcare system and to policy discussions vis-a-vis the changes that are needed to improve the health and well-being of all Americans. The establishment of the Office of the National Nurse would be a major step towards recognizing the profession of nursing for its contributions to medicine and health (separate and autonomous from the medical profession), and for moving the United States and its citizens towards improved self-care, improved health outcomes, and renewed standing as a country that views the health of its citizens as a true measure of "national security".
To send the Obama-Biden administration a message regarding this issue---or any issue close to your heart---simply click here to visit a special page for communicating your vision of America to the incoming administration. Your support for the establishment of an Office of the National Nurse would be greatly appreciated.
Wednesday, November 19, 2008
Meanwhile, a powerful bipartisan group of senators met in the offices of Edward Kennedy (D-MA) today, at the behest of Senator Max Baucus (D-MT), to begin shaping potential Democratic legislation vis-a-vis broad healthcare reform.
With 15% of the country's GDP going to healthcare and the number of American uninsured (estimated at 40 to 47 million) expected to rise as layoffs and unemployment increase in response to the economy, the stakes are high for meaningful healthcare reform.
We all know we can do better. In terms of healthcare access, funding and quality of care, the World Health Organization has ranked the United States as 37th in the world. Concurrently, our ranking in terms of infant mortality and life expectancy also continue to plummet when compared with other nations. These statistics bear out the widely accepted notion that the enormous per capita expenditures on healthcare by the United States government have fallen far short of their potential, and many other countries have somehow managed to produce far better results utilizing a percentage of what we spend here.
The battle regarding the potential benefits and pitfalls of universal healthcare is on. Yesterday on Digital Doorway, I pointed readers towards an excellent website where the arguments for and against universal government-sponsored healthcare is being argued quite cogently. This nationwide conversation will only intensify, and it remains to be seen how the Obama administration will rise to this Herculean challenge.
I am personally and professionally invested in the developments vis-a-vis healthcare reform in the United States, and I assume it will be years before we know the true successes or failures of President Obama's efforts, with support from Tom Daschle and other key players (not to mention the input of the American people, if it is heeded amidst the noise).
These next months and years will be an interesting affair, and great grist for writers, bloggers, healthcare policy professionals, pundits, and ordinary citizens alike. Meanwhile, as the conversation and debate rages, the statistics related to the uninsured and underinsured will certainly worsen. We can only hope and pray that a truly remarkable (and successful) solution is indeed within reach.
Tuesday, November 18, 2008
Apropos of Digital Doorway's predilection for issues related to healthcare, there is currently a lively and very interesting debate on the site which poses the question, "Should the U.S. Have Universal Healthcare"? I highly recommend visiting this particular debate, leaving a comment if you so desire, and perusing the site for other debates, such as "Does Marijuana Have Medical Value?", "Is There a God?", "Do Guns Make You Safer?", and "Should Your Daughter Receive the HPV Vaccine?"
Debate is a healthy way for issues of interest to be discussed under a framework of civil discussion and intellectual sharing. Opposing Views certainly offers a valuable forum for such discussions to take place, and I encourage anyone who enjoys such lively give and take to frequently pay this excellent site a visit.
Sunday, November 16, 2008
On the healthcare front, a number of U.S. hospitals are now in the difficult position wherein they now must buy back debt incurred from "Variable Rate Demand Notes" (VRDNs) and other forms of loans that hospitals use to do many things, including making capital improvements to their facilities. According to some reports, U.S. hospitals may be forced to buy back up to $8 billion dollars of debt, not an easy task in these cash-strapped times.
For hospitals, the economic times are indeed challenging. Patients with outstanding bills are less likely to be able to pay on time, if at all. Many employers are scaling back health insurance coverage for their employees, thus patients are often stuck with hospital bills that they cannot afford. Additionally, the numbers of uninsured and under-insured patients is rising in most states, and charity care is becoming increasingly burdensome for hospitals and health systems that provide such services. As some patients shift to Medicaid, hospitals also understand that reimbursement rates from Medicaid and Medicare often cannot match those from some private plans, thus revenues hemorrhage from numerous economic blood vessels simultaneously.
Equally troubling for hospitals, borrowing is exceedingly difficult, despite dire need for improvements to facilities, upgraded IT equipment and systems, and rising labor costs. With increased costs of utilities, food, supplies, and health insurance premiums for their own workers, hospitals also understand that many patients will continue to cancel or postpone many elective surgeries and procedures that bring much needed revenue to hospitals' bank accounts. With consumers charged co-pays of $200 to $400 for elective procedures such as colonoscopies and vasectomies, hospitals face a serious decrease in such procedures which are much less costly since they generally involve a stay of less than 12 hours from registration to discharge.
From The Wall Street Journal to regional news outlets in the mid-West, the signs all seem to be the same: hospitals are in for a difficult season as the economic belt tightens on the healthcare industry.
As a self-appointed advocate for the uninsured and vulnerable in this country, I am seriously concerned that an enormous cohort of Americans currently face a significant decrease in the availability of affordable preventive healthcare in all regions of the country, not to mention access to many specialists and other providers.
Overall, my fear is that the availability of free and low-cost care will suffer in the current economic climate, and patients in need of care will need to travel further and further afield in search of providers willing to see them, a burden that may keep numerous people from seeking medical attention at all. When access to medical attention is limited, it is frequently the uninsured and under-insured who are left in the healthcare dust, and there are millions of children who will fall into this unfortunate group as their parents simply struggle to make ends meet.
There will be much for the new Obama administration to consider when assessing the current (horrible) state of the American healthcare system. As impatient as we all are for change, it may be many months before any improvements are even suggested for fixing healthcare in this country.
Meanwhile, as hospitals struggle with their bottom line and millions of uninsured Americans struggle to stay healthy, we all must hope that there is still a possibility that the damage, as extensive as it may seem, can still be undone. And as for those millions of uninsured children out there, it should never get any worse than this.
Friday, November 14, 2008
Utilizing the minds of some of the greatest religious thinkers of our time---including
Archbishop Desmond Tutu---The Charter for Compassion "seeks to remind the world that while all faiths are not the same, they all share the core principle of compassion and the Golden Rule. The Charter will change the tenor of the conversation around religion. It will be a clarion call to the world."
The following video clearly illustrates the goals of this burgeoning global movement, and simply and coherently verbalizes the widely accepted need for a universal propagation of compassionate tolerance.
The Charter for Compassion will be collaboratively created using input from people from every corner of the globe via new innovative software that enhances a collective decision-making process.
The previously mentioned group of religious elders, dubbed "The Council of Sages", will work together to distill the thoughts and input of thousands of contributors into a concrete document that "will not only speak to the core ideas of compassion but will also address the actions all segments of society can take to bring these ideas into the world more fully. The Charter for Compassion will then be signed by religious leaders of all faiths at a large launch event, followed by a series of other events to publicize and promote the Charter around the world".
First, collaborative suggestions regarding the preamble of the Charter are being sought at this very moment.
Starting on November 20th, input will be sought regarding the "eight core elements of compassion":
- Compassion as empathy not pity.
- Compassion as concrete action.
- Compassion as a lens for scripture.
- Compassion’s role as a spiritual tool and its relation to be
- Compassion as fundamental to all faiths.
- Compassion as an urgent global need.
- Compassion as concern for everybody.
- Compassion and the Golden Rule.
Then, beginning on November 27th, there will be specific calls to action for different groups:
- Religious leaders
If you would like to submit your own story as a part of this growing conversation, click here to visit the segment of the site devoted to contributors' personal testimonies.
The Charter for Compassion may be the exciting birth of a new expression of how compassion, tolerance and global cooperation can change the world and alter humanity's very way of thinking. Please consider visiting the site and perhaps even sharing a story of how you feel compassion can be generated, propagated, and disseminated throughout the world.
Tuesday, November 11, 2008
Monday, November 10, 2008
For as long as human beings have engaged in battle and warfare, displaced persons have wandered the earth in search of a home. Recently, tens of thousands of refugees within the Democratic Republic of Congo have fled refugee camps due to increased fighting and direct attacks on refugee camps, possibly due to ethnic or religious differences. The Congolese people have suffered for decades, and there is no end in sight to their continued persecution and internal displacement.
The main global organization vis-a-vis the coordination of refugee protection is the Office of the United Nations High Commissioner for Refugees (UNHCR). Other organizations such as Human Rights Watch, Refugees International, and the American Refugee Committee are all committed to protecting refugees and providing relief and financial assistance that can mean all the difference for displaced persons struggling to maintain their health, safety and economic well-being under extraordinarily difficult circumstances. Similarly, organizations such as Doctors Without Borders manage to provide essential medical care to individuals and families suffering from acute injuries, untreated disease, psychological trauma, and the effects of poverty and deprivation.
Refugees from Iraq, Afghanistan, Palestine, Georgia, Darfur, Somalia, Sri Lanka, Myanmar and other troubled regions amount to an enormous population of world citizens who require medical care, advocacy, protection, shelter, clothing, food, and a means by which to make a living and educate their children, many of whom have never known a normal life free from displacement and suffering.
It is our collective responsibility to support the organizations that provide services and advocacy to refugees throughout the world. It is also our individual responsibility to pressure our elected officials to take action and to push for legislation that enhances the work of the lead refugee agencies that bear the brunt of the Herculean labor involved in supporting the millions of displaced people in need of essential services.
War, when waged by any country, almost ubiquitously creates refugees, and such battles frequently stir up---or are originally caused by---religious, ethnic and cultural differences between groups that fuel the fires of hatred and genocide that we have seen all too often in the current century and the last. While much of humanity has called for a universal end to war, there is currently no end in sight, and it is thus incumbent for humanity as a whole to work collectively to assuage the effects of war, racism, hatred, and violence.
Just as it has been said that none of us are truly free while others are enslaved, it can also be said that none of us are ever truly living in peace and safety until all are living in peace and safety. Perhaps a day will come when the plight of refugees will be an historic anomaly. However, the 21st century, indeed in its infancy, has already offered us a myriad of evidence that war, displacement, and genocide are still realities necessitating a powerful communal response.
Yes, today is indeed a day for blogging about refugees. But when the day is done and the articles are read and digested, it is then that the message truly must take wing---and we all begin to take action.
Saturday, November 08, 2008
Just an FYI that I will be interviewed live on the radio on Monday, November 10th at 11am EST on WOSU-AM, Columbus, Ohio. The interview will center around the recent publication of "Reflections on Doctors", and will feature myself, another contributing author, and the host of the program, Fred Andrle.
The show will be streamed live at http://www.wosu.org/radio/radio-open-line/ and call-in questions will be accepted from listeners after the first 20 minutes of discussion. Please listen if you can!
Friday, November 07, 2008
Bicycling with a giggling Dutch seven-year-old girl clutching my jacket from her perch on the seat behind me, my hands and ears are bitter from the cold while my mind gleefully takes in my surroundings. The Belgians don't have that famous tolerance and awareness for bicycles so common to the Dutch, so we're careful as we make our way through the densely populated and crazily busy streets.
I play with my hosts' young children, our only common language being the universal language of play. Their parents, my dear friends, translate as necessary, but we laugh and engage in all sorts of imaginative play without the need for intelligible conversation. I speak to them in English, they speak to me in Dutch. We shrug our shoulders and continue with our games.
Yes, it's easy to be charmed, easy to fall into the rhythms and practices that are novel yet familiar. My heart has always partially resided in Europe, a place where I feel strangely at home in so many ways.
My brief time here is precious, and I drink it in like the thirsty traveler I am.
Wednesday, November 05, 2008
As for me, I am struck by the historical significance of an African-American President of the United States. I am equally struck by the message that his election sends to young people of color everywhere.
Based on what I'm gleaning from my European perch, I can also see that the world is expecting change, openness, inclusivity, and a major about-face by the U.S. on climate change, global security, the wars in Iraq and Afghanistan, the global economy, and more. Meanwhile, many of us who voted for Barack are also demanding and expecting the same, and much more.
Power is corrupting, and the ways of Washington are devious and deceitful. I send my support and prayers out to the President Elect that he can truly deliver at a time when all eyes are turned on him, ears pricking up at the long-promise of deliverance to a land of hope.
Monday, November 03, 2008
So, until then, be well, and please check back in a few days for an update. By then, I'll hopefully be able to gleefully report on the high quality of chocolate, beer, mussels, and french fries at my disposal.
All the best,
Saturday, November 01, 2008
As a way to make all of my entries available in one place, I am creating links to each post---in chronological order of their publication---here.
Value Care, Value Nurses Scholarship
The Nursing Shortage: A Global Crisis, Close to Home
Obama, Healthcare and a Trio of Mythic Figures
The Aging World
Hispanics and the U.S. Healthcare System
Religion and Discrimination in Healthcare
Nurses' Voices, Nurses' Image: Nurses' Power
The Office of the National Nurse
Economics and the Elderly
The Irony of Mental Health Parity
Multiple Chemical Sensitivity: A Hidden Disability
The Nursing Shortage, PBS-Style
New Nurses, Primary Care, and the Calculus of a Multifaceted Shortage
Nurses have a great deal to say, and nurse bloggers are frequently outspoken, taking risks and shining a light in some interesting (and sometimes disturbing) corners of the healthcare system. My hope is that the Value Care, Value Nurses Nurse Blogger Scholarship will become an annual award that will continue to bring nurses' voices to the fore at a time when those voices are greatly needed.
Again, my sincerest gratitude to VCVN and SEIU for their support, generosity, and encouragement.
Friday, October 31, 2008
Thursday, October 30, 2008
While Dr. Zuger is admittedly underwhelmed by the lack of "literary style" demonstrated by the book's contributors, she states that "each story represents a step in understanding the inherent differences that separate the professions".
Even as the reviewer points out that the relationships described would not elicit "a minute of good television" (an assertion which I reject out of hand), and that the authors "write in shades of gray, describing interactions and relationships that are colorless, courteous, [and] businesslike", the Dr. Zuger seems to conclude that good, thoughtful medical care is, on balance, the end result of nurses' thoughtful reflections on the care that they and their medical colleagues provide.
In the course of her review, Dr. Zuger does indeed bemoan the fact that "no doctor out there is planning to publish a manuscript entitled 'Reflections on Nurses' any time soon", stating that "I am assuming my colleagues concur that such a project would be best left for retirement incommunicado somewhere on a distant Pacific atoll, where the mailman never calls." Sadly, this statement belies the fact that many doctors simply do not take the time to consider the crucial role that nurses play in the delivery of medical care, or, as the reviewer asserts, are potentially concerned that angry letters would ensue whether praise or criticism were duly proffered.
As a nurse blogger, I can attest that some of the best interdisciplinary writing does indeed occur in the medical/nursing blogosphere, and perhaps it is in that venue where the one-way conversation begun in "Reflections on Doctors" can be openly and honestly continued.
However, I can attest that "Reflections on Doctors" is one more step in further elucidating the multifaceted relationships between nurses, doctors and surgeons. Such literary excursions can only serve to inform the public, empower nurses and doctors to communicate, and to open additional avenues for future discussion.
Tuesday, October 28, 2008
It seems that everywhere I turn, someone is telling me that, a) they just applied to nursing school, b) someone they know just applied, or c) they or someone they know was just accepted/rejected from nursing school.
New nurses---and those who wish to be nurses---are entering a profession in transition, a profession that is losing its older members more quickly than its educational institutions can churn out novices ready to enter the fray.
Today I was interviewed on a radio program in Gainseville, Florida about a recently published book of non-fiction writing by nurses in which I was a featured contributor. The show's hosts seemed sincerely perplexed when I explained that older nurses are retiring faster than they can be replaced, and that nursing schools simply cannot offer faculty salaries that can compete with what nurses are paid in clinical positions. Thus, thousands of qualified applicants for nursing school programs are turned away each year since there are not enough professors to educate them.
As a consequence, far too many eager and highly qualified applicants are rejected from nursing schools around the country---and in fact, around the world, as well---and where do they turn? Do they re-apply the following year? Do they look for another school to which they might have a chance of acceptance? Or do they give up their quest to join the nursing profession and simply move in another career direction entirely?
At a time when aging Baby Boomers are living longer with chronic illnesses and are increasingly in need of quality nursing and medical care, it's time for our government and other influential entities to step up to the plate. The government itself must realize that the calculus of the nursing shortage must change, and this continuous hemorrhage of nurses from the profession without a consistent transfusion of new nurses must be short-circuited.
I will grant that we are in difficult economic times. I will also admit that the U.S. healthcare system is dysfunctional at best, and broken at worst. It is also plainly apparent to me that a growing lack of sufficient nurses to provide care in numerous facilities across the country is a recipe for a public health disaster of enormous proportions.
Meanwhile, if an Obama administration gains control of the White House, a push for near-universal healthcare coverage for all Americans will most likely be an important agenda item in the first year of such as administration. This is a laudable goal that may or may not be achieved. However, it must be acknowledged that the process of bringing more citizens into the healthcare system must be met by a similar process of encouraging more healthcare providers to take part in delivering that care.
The nursing shortage is real, and it is effecting how healthcare is provided around the country. Similarly, there is a very real shortage of primary care physicians, with more physicians opting for specialties in which the demands and low pay of primary care are eschewed.
Now, it is easy to see that if more citizens are insured (a goal that should absolutely be pursued despite the current economic climate), then we must simultaneously ensure that a sufficient number of physicians and nurses are available to provide the quality care that would consequently be delivered.
We must create incentives to lure physicians back into primary care, perhaps by reaching out to medical students and residents with a campaign to describe the value and rewards of primary care. Financial incentives such as loan repayment programs could also be enacted for new doctors who enter the field of primary care or family medicine, whether they work with vulnerable populations or not.
In terms of the provision of primary care, an expansion of Masters-level Nurse Practitioner programs and Doctoral nursing programs (especially for the new Doctor of Nursing Practice designation), could go a long way toward assuaging the nationwide shortage of primary care physicians, especially if interest-free loan programs and other incentives are created and fully funded.
We also must urgently expand the capacity of nursing schools by subsidizing nursing professors' salaries, expanding programs, and enacting a massive campaign of grants, scholarships and interest-free loans to make nursing school more readily affordable for a broad spectrum of prospective students.
Yes, these programs would indeed be expensive, and a great deal of money would need to be designated for such a sizable undertaking. Yet we must examine the relative costs of our inaction, and the crisis of untreated chronic illness and substandard medical care that will be the result of such a failure to act.
As the population ages and people live longer with more complicated constellations of chronic illness and multiple comorbidities, the provision of medical care will necessitate an enormous number of nurses as well as a solid base of primary care providers for patients across the lifespan. Nursing education must be funded and supported, nursing faculty must be recruited and well-compensated, and primary care providers must be given viable reasons for remaining in an area of medicine that has fallen from favor.
We cannot afford to ignore the multifaceted issues which are throwing the American healthcare system into crisis, and rest assured that any money invested now in improving the delivery of care will pay astronomical dividends in terms of prevention, improved healthcare maintenance, and increased cost-effectiveness. It is in our best interest to act, and we can only hope that political will and popular support will be enough to set these wheels in motion.
Sunday, October 26, 2008
We all enter nursing for various reasons, but one would hope that the majority are there due to a love of people, a willingness to provide quality care, and a sincere desire to be a participant in the healing of others. Nursing has been espoused to be a "calling" (some of us do indeed hear voices!), an "art", a science, a career, a vocation, and a profession. Bravo to each descriptor listed above, yet nursing can also be defined as a purgatory of stress, a miasma of unmet need, and a mania of martyrdom. To where does the overworked nurse turn?
Self-care is an essential tool in the arsenal wielded by the prudent and self-aware nurse. One must recognize that one's effectiveness in the world---both as a nurse and an individual---is directly affected by one's level of inner satisfaction, healing, and ability to weather the vicissitudes of life. We have all heard stories about nurses suffering from addiction. Whether said nurse has a genetic predisposition to addiction or simply a conscious desire to self-medicate due to stress, that nurse's active healing is paramount to his or her ability to provide optimal care and move effectively in the world.
Whether it be exercise, meditation, gardening, baking, psychotherapy, or blogging, each of us must find ways to nurture ourselves amidst the frequently tumultuous maelstrom of nursing. No matter what aspect of nursing where we find ourselves---university, clinic, homecare, hospital, or research---self-awareness, self-care, and an active role in pursuing optimal mental and physical health is paramount. Sadly, many employers do little to support or encourage self-care, focusing instead on productivity, attendance, and other quantifiable measurements of one's performance. When was the last time your supervisor evaluated you to make sure that you're taking enough vacation time or eating well at lunch? Does your supervisor make sure that you're satisfied and feel cared for at work? Does your annual "performance evaluation" include your employer's sincere desire to ascertain whether your workplace is healthy for you? I would think not. If so, where do you work and are they hiring?
I personally use many forms of healing---both Eastern and Western, orthodox and unorthodox---to continue my own trajectory towards self-actualization and health. With a number of chronic illnesses and personal struggles, my work certainly does impact my life at home, and vice-versa. My many responsibilities seem to bleed into one another, with the "workplace immune system" occasionally invading that of the home, both systems stressed beyond their perceived limits. Exhaustion at work leads to exhaustion at home. Relationships suffer. Personal goals are relinquished. Volunteer activities atrophy. Joy appears to vanish.
So, Nurse Martyr, it's time to focus on yourself. Your employer will not do it for you, and most healthcare institutions will suck you dry and spit you out without a second thought. Protect yourself from the ravages of this most rewarding and exhausting of careers. You deserve it. Your family deserves it. Your patients deserve it. The world deserves it.
Nurse, heal thyself.