Saturday, April 29, 2006
Our neighbor gave us this prayer written on a piece of paper today in honor of Sparkey, for whom we are having a weekend-long Living Memorial. Our son, who visited for the occasion, remarked how we always seem to find reasons to have parties.
Spring brings much newness: the earth awakens, the flowers bloom, the trees blossom, the owls nesting in our neighborhood have two baby owlets in their nest high above the ground. But with the passing of the seasons comes the passage of time and the necessary ageing that accompanies that phenomenon. Canines age seven biological human years for each year they tread the Earth, and our choice to accompany them on this symbiotic path means that we must also say goodbye when their time to depart approaches. A sad but true reality that no amount of denial will assuage.
Equally, humans too must face their mortality. Thinking of Sparkey's illness and the need for people who love him to say goodbye, I also think of a patient who is nearing his end, his family providing his care and watching him make the choice to no longer leave his bed. On Monday, the hospice nurse and I will sit with the family and our mutual patient and explain the options of withdrawing fluids and nutrition over a period of several weeks which will actually ease his suffering and allow him to begin the transition out of his body.
I think to myself: would we just withdraw Sparkey's fluids and nutrition and let him slip away with morphine and immobility, or would we simply euthanize him with the assistance of the veterinarian, precluding the need for such a drawn-out affair? The issue of humane death (for both humans and canines) is foremost in my mind these days.
Sunday will bring yet another opportunity to be with friends, gather my thoughts, observe the life around me, and prepare to re-engage in the workaday world once again on Monday. Sparkey's eventual departure, my patient's deneoument, it is all as it should be, even when I cannot even see the forest for the trees. Whatever the near future brings, being in the present seems to be the best way of arriving there. Tomorrow will be its perfect manifestation, and our world will continue to turn beautifully, even as we dream.....
Thursday, April 27, 2006
Rise before the sun does.
Drink snowmelt. Eat oatmeal.
Observe the habits of lichens.
Watch clouds. Remember
the names of plants.
Walk, or work, enough
so that your rest has bones,
but not so much
that you are too tired at day's end
to ease next to your love, read poetry
aloud, wrestle, tickle, belly-laugh.
Stalk ptarmigan. Swim naked.
Take good care of your teeth.
Spend no money. Make
no pollution. Plan books,
but do not write them.
If you must speak with someone,
let it be about the weather, animals,
or prehistory, or the design of greenhouses.
Think about children. Go barefoot. Invent
political parties. Plot community.
Wash the dinner pot immediately.
Wednesday, April 26, 2006
"That's right. I'm thrilled," said the hematologist/oncologist.
"Wow. That's good," he beamed. I just smiled from my chair.
I've written about Patient X a number of times. He almost died from alcoholic hepatitis about eighteen months ago. He was living in the basement of a friend's business, drinking himself sick, psoriasis ravaging his skin, his gout painful and swollen. He was miserable and would lash out at every opportunity. I used to avoid him.
Then his liver crapped out and we read him the riot act. After discharge from the hospital, he went on a little weekend bender. The following Monday we had a frank discussion, and I offered him two alternatives: stop drinking, or die a wretched death. He hasn't had a drink since January of 2005, and the credit is all his. No AA. No meetings. No psychotherapy. Just him and his mind.
That said, he's not out of the woods forever. There is cirrhosis and permanent scarring of the liver that will never go away. Last month, he came to see me with complaints of black, tarry stool and vomitus like coffee grounds. Needless to say, that led to a hospitalization---stat.
Today was follow-up with his hematologist. He had been diagnosed with hemochromatosis---a dangerous iron overload in the liver and blood. Luckily, he had the type caused by damage from alcohol, not the genetically inherited variant. Thus, his current labs elucidate the fact that his liver, freed from the toxicity of alcohol intake, has recovered completely from the iron overload, illustrating for us that some of the non-cirrhotic areas have actually healed. As we enjoyed the fruits of this success, the hematologist and I exchanging very pleased looks back and forth, Patient X sat on the exam table beaming.
"You know I'm leaving for another hospital in six weeks," the doctor said. "You'll be following up with someone else next time."
"Can't I see you at that other place?" he asked like a puppy eager to please his master.
"It's a half-hour ride for you," she said, "but I'd be happy to continue to see you. After all, it'll only be an annual visit now."
"I'd be willing to take you there next year, Mr. X," I chimed in. I pictured taking him out to lunch, making an afternoon of it.
"Wow." He was beaming. "That's double good news. I get better, and I get to see you again next year."
The doctor's kindness and bedside manner is impeccable---just the right combination of warmth and clinical acumen. Perfect. In fact, she and I had an amazing and moving interaction with another mutual patient last year, and her manner is still amazingly consistent. I'll miss knowing that she's here in our hospital system, but she'll actually be working closer to my hometown, and we'll still bump into each other on the street from time to time since we both live in the same area served by her new hospital.
She describes for us her plans for a two-month break between jobs and a trip to another country this summer.
"Well, I'd better apply for a passport right away," quips Patient X. "I don't want to get left behind. Should I pack light?" We all laugh heartily.
This man has faced death without fear. Not only that, he has wrestled with his own addiction, grappled it to the ground, pinned its face into the dirt, and shown no mercy. He buried that addiction under the topsoil of his new love of life and desire to live. It's history, a memory.
"My old man forced me to drink a quart of whiskey when I was fifteen. Boy was I sick. I guess he wanted a drinking partner. That started it, and it didn't stop 'til last year. Jesus."
"I'm so sorry," the doctor said, hand on his shoulder.
"But this is great!" he continued, recovering from that memory. "All I want is to ride my bike, watch movies, eat well, and take my meds." His ruddy face was lit from within.
"Well, get some labs in six months, follow up with this guy" (she points a thumb at me) "and I can see you next spring."
"You got it, doc," he says. "Have a great time this summer. I mean it. And thanks again."
She closes the door and we walk down the hall.
"Congratulations," I say. "Want a ride home?"
"Nah. You go on. I gotta use the can, then I'll catch the bus." He shakes my extended hand, his foot holding the men's room door open.
"Don't be a stranger."
I exit into the sun and slight breeze, smiling. It's a very good day to live.
Tuesday, April 25, 2006
For those of you who have not yet done so, please consider visiting my new blog, Latter Day Sparks, the chronicle of the life and times of my dog Sparkey as we near the end of our time on earth together.
For Grand Rounds fans, although I do not post a link each week (which I should), it is always worth visiting. There is a link to the Grand Rounds schedule and archive in the Links section nearby. This weeks' offering can be found here. A startlingly fun and rather racy missive from Chronic Babe, featured in this week's Grand Rounds can be found here. I highly recommend it for both entertainment and educational value.
Lastly, my wife and I have joined a new online community called Zaadz which is highly recommended. It's the only online community we've found whose main purpose is to change the world. Lofty goals, yes, but we have sincerely found that the quality of participants and our interactions with said members are indeed impacting our lives in a big way. As for changing the world, that remains to be seen, but healthy relationships and connection/community are always a good start.
With spring blessings to each of you, dear Readers. Until next time....
Monday, April 24, 2006
Sunday, April 23, 2006
The clouds and rain have made it easier to be ensconced at home. There has been no sun to needle me and interrupt my springtime napping. Sparkey the dog, now on hospice care, receives his 500 cc's of subcutaneous Lactated Ringer's Solution every morning, and he has actually had somewhat of a bounce back from his debilitated state following his discharge from the hospital last Tuesday. His sister Tina is enjoying the tasty meat we vegetarians are cooking for him to build up his wasting muscle mass, although I am gravely concerned about his kidneys' ability to process so much protein. That said, he won't eat any carbohydrates, per se (except for Ritz Crackers!) so animal protein is really our only option at this point. Failing kidneys or no, the old guy has to eat.
Tomorrow I hope to learn the cause of death of my patient who died unexpectedly on Friday morning. I am also anxious to learn the status of another patient who is home with hospice care and now verbalizing a desire to die. He has not yet been told that he has the right to refuse fluids and nutrition, but he will need to be informed soon so that he has all of his options open to him. Another patient is planning to return to Puerto Rico in June so that he can die peacefully with his family, and I'm realizing that I will sorely miss him and the opportunity to be with him in those final days.
Spring is filled with endings, beginnings, and continuations, and the lesson seems to be that I must unconditionally embrace them all.
Friday, April 21, 2006
I wasn't at my desk for five minutes when the telephone rang.
"This is Doctor M. You won't believe this, but Patient So-and-So is dead."
"You've got to be kidding me." (I can't believe I really said that.)
"I'm totally serious. He was found dead on the living room floor at by his brother."
"Jesus. Holy shit. What happened?"
"Holy shit is right. I have no idea. I just got a message from the medical examiner. He may call you too. Can you call his family and find out how they're doing?"
I put down the phone as my email program opened to reveal an email from my wife. It was an invitation that she's sending out to invite our friends to a "living memorial" for our dog Sparkey next weekend, to give people a chance to say goodbye before he declines further. Tears stream down my face as I read:
Death is a part of the landscape, and in a conference on Dialectical Behavior Therapy that I attended the other day, "radical acceptance" was one of the keys to personal resiliency. I felt that I could immediately put this idea to use:
I must radically accept that Sparkey is failing and his death is in the near future, if not imminent.
Patient So-and-So died, and it's not because I advised his mother to nurse his cough and cold symptoms earlier this week with fluids and acetaminophen. Guilt is so creative and insidious. He was a grown man and could have gone to the ER if he needed to. The autopsy will absolve me of lingering guilt, or at least I hope so.
My chronic pain and fatigue is something I must contend with--live with, even. Perhaps it can be overcome, or perhaps I'll eventually be chronically ill like my patients. I don't plan on it, but I just have to accept that this is where I am right now, and this cough and cold only add to the feeling of misery. (Doesn't it sometimes feel---in the midst of a protracted cold---that one has always been sick? Doesn't one's illness at times take on an almost cinematic unreality? Doesn't it simply color everything in its path and leave a washed-out grey in its wake?)
That said, recover and healing signify the day when the illness resolves, the head clears, and the light returns to one's eyes. Recovery and healing also signify the day when, opening one's eyes in the early morning, the thought of the recently deceased loved one changes from a heart-wrenching pain to a soulful ache with touches of sweetness to mitigate the grief.
The deaths, the illnesses, the travails, the blows visited upon the body and mind---these are all tests of our resiliency and ability to accept that which visits our lives. Acceptance is not for the meek---it can often be a radical step towards healing and recovery.
May we all take that step when it most needs to be taken.
Thursday, April 20, 2006
Today, returning to work after one sick day and another day at a conference, I was informed that the director of a central social service agency in our portion of the city was shot while sitting in her car in front of her office, talking to a coworker at the end of the day. At 5pm, broad daylight, a Tuesday afternoon in the slowly heating city, the spring weather giving a taste of the simmer that settles on the city in the warmer months of summer. Caught in the crossfire of a gang-related shooting, the bullet lodged in her shoulder and did not penetrate past the muscle and sinew, sparing her vital internal organs, the heart and lungs. I hear she's doing OK, and will return to work soon.
My coworker who told me of the incident also reminded me of something I had blocked out: her partner, who used to work for us, was also caught in the crossfire two years ago, a bullet shattering her rear windshield. "They never found the bullet," she said. "It must still be lodged in my car somewhere."
Occupational hazards abound in any line of work. Miners, factory workers, surgeons, janitors, garbage collectors---there are many hidden dangers. We all just hope it won't happen, whether to us, someone we know and love, or someone we don't even know. Senseless violence and killing permeate the world we live in, and it seems to not even stop at some of our doorsteps. I count my blessings as I sit in my quiet, suburban/semi-rural home, safe from the dangers of the city. It's a strange dichotomy, this reality at home and that reality at work. It isn't a cookie-cutter world, and the knowledge of flying bullets so "close to home", so to speak, is enough to give one pause on even the most beautiful of spring days. Is it worth it? Can we all be frightened away? Perhaps some of us, but the struggle for the heart of our society is on, and it is often in the cities where that struggle is most actively engaged.
"It's just enough, just enough, for the city." (with a grateful nod to Mr. Wonder)
Wednesday, April 19, 2006
A long telephone conversation this afternoon between myself and a hospice nurse sorted out some of the needs of my very ill patient vis-a-vis his comfort and treatment. Tube feedings, suction, a home health aide, symptom management, a pressure-relieving mattress---the wheels are turning and I will squeeze everything I can out of the system for his benefit. Dying can be so complicated these days, and my job is keep that ride as smooth as possible for all concerned.
Death and dying at home or at work---it's all the same. It's about love, comfort, compassion, and dignity. Canine or human, the goals are interchangeable, the methods differing slightly in delivery but never in spirit or intention.
Tuesday, April 18, 2006
As I lie here in my bed, the window open and light streaming in, I hear the sounds of a large felled tree in our neighbor's yard being chain-sawed and stripped and chipped into a new existence as mulch and firewood.
Prior to school, Mary and I will drive to the animal hospital to pick up Sparkey and bring him home. The compassionate and sensitive vet caring for him in the ICU thinks he might live two more months if we're lucky and he's not suffering. Otherwise, we may need to euthanize him sooner. Composing my post from last night, I burst into tears before I could finish writing, the first full conscious recognition that our dear friend is dying. I can't wait to get him home and let him know he'll be forever free of the confines and strange smells and sounds of the hospital.
We've lived through our best family friend being murdered by the police, many friends and clients dying, elderly family members dying, my wife's extended family suffering the ravages of Hurricane Katrina. Now the focus is close to home: our beloved old dog. Every time I've heard of a neighbor's or friend's animal dying, I've thought, "There but for the grace of God go I". Now here we are, it's no longer "there". And here is where we need to be.
Monday, April 17, 2006
"Yes," he mouths, no longer able to speak from the effects of invasive cancer.
"I love and admire you so much," I told him. "We'll do everything we can to keep you comfortable and at home." We shook hands, the sound of the oxygen compressor filling the room in the vast silence that followed that simple exchange.
Then I called hospice and let them know that it's time to get their services on board. We're all getting ready.
From there, I went back to the office, took care of some business, and then went over to the local animal hospital, where my 13-year-old dog has been since yesterday. I sat in his little cage/cubicle with him. Renal failure manifests as vomiting and anorexia in dogs. He vomited so much on Sunday, and then he could barely stand. We packed him in the car and sped to the animal ER.
Interestingly, two years ago on Easter Sunday---the very same day two years ago---I rushed him to the same animal hospital, and it was acute pancreatitis. At that time, he had not yet begun failing in earnest, and I wanted them to do everything they could, even in the face of respiratory arrest. This time is different. The poor old guy is DNR/DNI. I visited him in the ICU after work today. He didn't even get up to greet me, though he licked my nose as I talked to him, looked him in the eye, and brushed him down, removing large amounts of winter undercoat. I sat in that cubicle for an hour, the IV whirring as it instilled fluids in his canine veins. I told him I loved him more times than I could count.
I guess we're always getting ready, be we canine or human. We're getting ready from the moment we leave the womb. We hope the journey will be gentle. We hope there will be joy along the way. We hope we will not suffer, nor will our loved ones. We hope to die in peace.
My first dog, my dear friend, will come home tomorrow and begin a final chapter of his life's winter. We will love him and feed him and give him IV fluids as long as he seems to not suffer. And when the time comes, when we're all ready and the signs are clear, we'll call the vet, she'll come to our home, and we'll tenderly hold Sparkey in our arms as he leaves this sweet earth.
Meanwhile, my patient, unable to have his life end so mercifully, will see it through to the bitter end, hopefully in the comfort of his sweet and lovely home. Which is better? Which is more "humane"? Who will experience the least suffering?
All beings deserve to die with dignity and freedom from suffering. May we be willing midwives to them all.
Sunday, April 16, 2006
The Pagan Origins of Easter
By Royce Carlson
Easter celebrations were held hundreds of years before Christ was born as festivals of spring honoring Eostre, the great mother goddess of the Saxons. This name was fashioned after the ancient word for spring, Eastre. The goddess Ostara was the Norse equivalent whose symbols were the hare and the egg. From this comes our modern tradition of celebrating Easter with eggs and bunnies.
In the Mediterranean region, there was a pre-Christian spring celebration centered around the vernal equinox (March 20 or 21) that honored Cybele, the Phrygian goddess of fertility. Cybele’s consort, Attis, was considered born of a virgin and was believed to have died and been resurrected three days later. Attis derived his mythology from even earlier gods, Osiris, Dionysus, and Orpheus, who also were supposed to have been born of a virgin and suffered death and resurrection as long as 500 years before Christ was born. The death of Attis was commemorated on a Friday and the resurrection was celebrated three days later on Sunday.
There are other Easter traditions that are pagan in origin. The Easter sunrise service is derived from the ancient pagan practice of welcoming the sun on the morning of the spring equinox, marking the beginning of spring. What we now call Easter lilies were revered by the ancients as symbols of fertility and representative of the male genitalia. The ancient Babylonian religions had rituals involving dyed eggs as did the ancient Egyptians.
The Christian version of Easter is celebrated after the first full moon after the vernal equinox. Modern day neo-pagans usually have their spring celebrations on the day of the equinox. Either way, these celebrations have gone on every year continuously for over 2500 years. So, next Sunday, if you go to an Easter sunrise service, hunt for colored eggs or eat marshmallow bunnies, remember you are indulging in pagan rituals that celebrate fertility and the advent of springtime!Zenzibar Alternative Culture was the source for this article and can be found at http://zenzibar.com.
Saturday, April 15, 2006
I was tagged by Mary at The Mote in the Light and I'm It. I usually don't respond to these tagging emails, but I thought I'd give this one a try as it seems fairly innocuous and doesn't threaten me with seven years of bad luck or psoriasis if I don't follow the instructions......
Four Jobs I’ve had in my life:
Four Movies I Could Watch Over and Over
The 400 Blows by Francois Truffaut
Wings of Desire by Wim Wenders
Four Websites I Visit Regularly
Four of My Favorite Foods
Seven Star Farms Organic Lowfat Plain Yogurt
Ripe Macintosh apples in the fall
Anything cooked by my wife
Four Places I Would Rather Be Right Now
An Alternate Universe Where George W. Bush never became President
Anywhere I could be with my love
Four Most Wonderful Places I Have Been
At my love’s side
Four Books I Could Read Over and Over
The Starseed Transmissions by Ken Carey
A Moveable Feast by Ernest Hemingway
A Death in the Family by James Agee
Four Songs I Could Listen to Every Day
Chalkhills and Children (XTC)
First Day of My Life (Bright Eyes)
Matte Kudesai (King Crimson)
Everything Merges with the Night (Brian Eno)
Four Reasons I Blog
Four People to TagYou
And you too....
Friday, April 14, 2006
Today, I visited you at the end of a trying week. There you were, clean-shaven, hair recently trimmed, your enormously swollen legs up on a chair. You shook my hand and almost smiled. Asked if you felt pain, you said "absolutely none". On this visit, you didn't tell me that you were hungry. Perhaps now you're used to the fact that your stomach is now an empty pouch, the esophagus above it non-existent.
The Infectious Disease (ID) specialist, a pretty young doc new to our facility, stops me in the hall and we discuss your case and your illustrious history of excess and poor choices. I tell of the many conversations you and I had had, or rather, the numerous times I had regaled you with tales of what would happen if you didn't clean up your act and take your health seriously. The doctor describes Boerhaave's Syndrome for me, and based on the fact that enormous amounts of gastrointestinal fluids and detritus poured into your chest cavity after your esophagus burst (and you did not seek medical attention for several days), we marveled that you're still among the living. We discussed the possibilities of you eventually having an artificial esophagus and what that might mean for your future.
I tell the curious doctor stories of how I would arrive at your apartment (prior to your eviction, that is) and knock, hearing sounds of hurried cleaning and movement behind the locked door. Of course, drugs and assorted paraphernalia were being summarily hidden upon my precipitous arrival, and you would deny all drug-related activity as we sat at your kitchen table, your friends in the other room, watching TV and smiling when I poked my head around the corner. You were a bomb waiting to go off. I just couldn't know what you would look like when the smoke cleared. Now we know what you look like, although the shape of the future is uncertain. Many months of hospitalization are ahead, with more surgeries, more complications, further discomforts and indignities.
I inform the ID doc that the floor nurse complained to me that huge herpetic sores covering your buttocks and scrotum are being treated only topically and seem to be spreading. Speaking of indignities, we ask you to stand and bend over your walker and we examine your buttocks with our hands gloved in those strange blue powderless latex-free exam gloves. She agrees to order intravenous acyclovir. Sometimes my intervention and input is all it takes to get something done. Other times, it's like screaming into the wind. I guess the wind's in my favor today.
As I take my leave of the floor, you're ambulating around the ward with the nurse and another helper. The urine collection bag dangles from your walker, I can see the outline of the feeding tubes which protrude from your abdomen under your hospital "johnny". Your ears look enormous in contrast with your gaunt face, skinny neck and close-cropped hair.
If only I could have shown you this potential future with a crystal ball, illustrating for you the fate which only you had the power to avoid. If only I could bring other troubled patients to see you, show them your feeding tubes, the CT-scan of your non-existent esophagus, have them sit with you a while, and perhaps decide to turn themselves around. If only the traumas of your earlier life of which I am ignorant had not occured, or you had recovered from them without turning to drugs and self-destruction. If only your siblings, who love their eldest brother despite his failings, could have helped you turn it around. If only.
You're in good hands now, off the streets, the life that you knew before a mere memory. While I regret your suffering, I also absolve myself of feelings of responsibility for this turn of events, knowing that I could not produce the deus ex machina that would magically transform your life and lift you from your despair. The deus ex machina can only be your own spirit now, a power within you that will carry you along this troubled road. May blessings of strength and courage anoint you at every step of the way.
Thursday, April 13, 2006
“I am created in Divine Light.
I am sustained by Divine Light
I am protected by Divine Light
I am surrounded by Divine Light
I am permeated by Divine Light
I am ever growing into Divine Light
“Divine Mother, open my eyes to see your light.
Open my ears to hear with compassion.
Open my heart to know my patient’s pain.
Open my mind to understand your symbolic messages.
Use my voice to speak with wisdom
That I may be present in consolation,
even as you console me in life’s dark moments.
“Beloved Mother, I am your simple servant.
Use my heart, my mind, my voice.
As I sit today in my office
remove the film from my eyes,
the cotton from my ears,
the distractions from my mind,
the resistance from my heart.
“Lift the veil as I contemplate my patient,
so that I see them sitting there in your love, as your creation.
Keep me ever aware of your presence
in the potentials of this soul before me.
“My patient is created in Divine Light.
My patient is sustained by Divine Light
My patient is protected by Divine Light
My patient is surrounded by Divine Light
My patient is permeated by Divine Light
My patient is ever growing into Divine Light
“Be manifest in all we do.”
Wednesday, April 12, 2006
Every morning a new arrival.
A joy, a depression, a meanness,
Some momentary awareness comes
as an unexpected visitor.
Welcome and entertain them all!
Even if they are a crowd of sorrows,
who violently sweep your house
empty of its furniture.
Still, treat each guest honorably.
He may be cleaning you out
for some new delight.
The dark, the shame, the malice,
meet them at the door laughing,
and invite them in.
Be grateful for whoever comes,
because each has been sent
as a guide from beyond.
Monday, April 10, 2006
Even as I make my lunch, pack my bag, clip on my beeper, and check my day's appointments on my Palm Pilot, I begin to tense up in anticipation of what could be seen as the onslaught of the day. Rather than being an onslaught, why can't it be a challenge, a gift, a call to service? Perhaps knowing that I won't return home for 14 hours makes my Mondays more difficult to face. But today, knowing that the semester of teaching will end in five weeks, I recognize that many hours usually spent preparing lectures and reviewing texts will soon be freed from the shackles of extracurricular responsiblity.
John Lennon once said, "Life is what happens when you're busy making other plans." I'll add that life is what happens whether you live in dread or wide-eyed wonder. How can I choose anything but the latter?
Friday, April 07, 2006
The next visit was more pleasant and easy-going: a bipolar woman with emphysema, diabetes, a smoker’s cough, and a black cat who curled in my lap as we chatted. This woman’s blood sugars are superlative, and she spent most of the visit psyching herself up to quit smoking. Fortunately, a recent CT of the lungs revealed that shadows on a recent chest x-ray were just emphysema and fluid, not the dreaded cancer she fears. That said, further smoking will only increase the risk that, one day, another CT scan might bring most unwelcome news. She complained of the cost of nicotine patches and the fact that Medicaid won’t cover them. I asked her how much she spends on cigarettes a month. She laughed and looked away.
Trying to avoid the highway construction I noticed on the way downtown, I zigzagged my way through a neighborhood that I don’t always traverse. My descent down a narrow street was delayed by a strange sight: a red and pink heart-shaped helium balloon tied to a ribbon with one of those little plastic discs at the end of the ribbon to anchor it and keep it earthbound. The phrase “I love you” graced its flank in cursive script. This balloon was literally crossing the street, skipping up and down in the air, lightly touching the macadam as it made its way safely from one sidewalk to another. An oncoming car also stopped to let it cross. It reminded me of that scene from American Beauty, where the young man/filmmaker records the ballet-like gyrations of a white plastic shopping bag caught in the concrete corner of an alley by a temporary urban whirlwind. (The whole movie is worth that sequence, if you ask me.)
Having avoided the traffic, I leave the balloon to its own devices, Todd Rundgren’s song “A Dream Goes on Forever” in the CD player. You just never know the strange blessings that will cross your path in the course of a day.
Wednesday, April 05, 2006
“I know, but not til you’re ready.”
Patient X, whom I sent to the ER first thing Monday morning, did indeed have an upper GI bleed (UGIB) but we just can’t elucidate where exactly that bleeding was happening. Notwithstanding, three units of blood and enormous amounts of IV fluids have stabilized him to a large extent. Sadly, despite his end-stage liver disease, obtaining a liver donation for transplantation in our sorry state is a challenge and a half, so we must simply deal with the liver at hand.
A note in the chart stated that the patient’s pain was being treated with intermittent Tylenol and Percocet. Even though I’m “just an outpatient nurse”, I left a note in the chart that perhaps straight oxycodone might be less risky in a patient with advanced liver disease since Tylenol is so harsh on the liver. Also, another note details the patient’s verbalized suicidality and desire to leave AMA early this morning. I leave another note that I can be called at any time to intervene in such psychosocial crises involving my patient. Unfortunately, I assume that very few members of the team actually read my notes.
“Did you really threaten to kill yourself and leave AMA, not necessarily in that order?”
“Yeah, I did.”
“Did you mean it?”
“At the time I did, but not now.”
“Well, cut it out.”
“I’ll bring you another newspaper tomorrow.”
“Thanks. Thanks again.”
Our lighthearted banter belies a deeper meaning, and I know my visit to the hospital means alot to him. We’ve come a long way, but we also recognize that his liver is shot to hell. What’s left unsaid is the issue of his mortality and prognosis, and this we leave for another day. Until then, I’ll bring the paper every day and keep Patient X in line.
Tuesday, April 04, 2006
Monday, April 03, 2006
“I feel terrible,” he said.
“You look like shit,” I replied.
His cirrhosis is advanced, which we know from a liver biopsy. It’s also enlarged, which was clear on the ultrasound. His colon is clear of cancer since the recent colonoscopy was negative, but we know there are esophageal varices (picture varicose veins in his esophagus) from the increased blood pressure in the “portal circulation” connected to the liver. It’s also clear that his liver has a hard time processing dietary proteins because his blood levels of ammonia are chronically high. (Yes, ammonia like you use to clean your floor---it’s a product of the breakdown of dietary protein, and a sick liver can’t get rid of the ammonia so it builds up in the blood.)
“My stool was black and tarry all weekend, and when I vomited it looked black like coffee,” he told me. “Like coffee grounds?” I asked. “Yeah, like used coffee grounds. How’d you know?” I felt his abdomen---not hard, not tender. His skin wasn’t yellow from jaundice. Last time he was in liver failure and he was jaundiced, his eyes looked like flashlights covered with yellow cellophane. Not today, though. His blood pressure, pulse, and temperature were all OK. But he was thirsty, and said he was peeing in small amounts. “I feel dizzy, and the side of my head’s been numb all weekend.”
Differential diagnosis? Well, I assumed some source of internal bleeding (colon, some part of the portal circulation around the liver, or esophagus?); dehydration from bleeding, vomiting, and diarrhea (despite lack of rapid heart rate and other signs); anemia (from blood loss, causing dizziness, pallor, and numbness of face and head). His ammonia level is probably not astronomically high because he’s not really confused as he has been when it was really elevated.
Course of action? Nothing else to do but call 911 and ask for an ambulance to come to the clinic and take him to the ER at our affiliated hospital. His primary MD was not in, all the other MDs were busy, and one of our NPs agreed with my plan as I called 911. I didn’t need anyone to eyeball him. This was a no-brainer.
The paramedics came quickly, carted him off, and I called the ER charge nurse to give her a heads up that he as on his way. An hour later, I was to receive a call from the aER resident to let me know that he was being admitted to one of the floors. I gave her quite an earful based upon knowing this patient so intimately for three years. She thanked me and hung up the phone.
My workday was now only 30 minutes old. How many voicemails did I have already?
The day continued in a similar fashion of busy-ness, and then I left for school to torture fledgling nurses with details of cardiac and endocrine disorders. I shared the story of Patient X, who is now safe in the hands of the medical team at the hospital. My students' humor and good-natured banter quickly dispelled my morose mood from the vicissitudes of the day.
I am now safe in the bosom of the homestead. One day down, four to go. Is it really only Monday?
Sunday, April 02, 2006
Is there some excitment as the week looms on the horizon of morning? Honestly? Not tonight.
Is there a sense of wishing there was just one more day to be at home and care for self and family? Oh, yes.
Does it sometimes feel like work gets in the way of so many other things which cry out for attention and time? Astronomically so. It has nothing to do with hating work or resenting needing to do so. Work is said to be love made visible. Perhaps it's the Puritan work ethic, the forty-hour week, the paltry two weeks of vacation per year, and the pressures of productivity which decrease the joy experienced when working. I once had a caseload of 35 patients---a luxury. Now, with just over 80, the amount of information juggled at any given time is wildly stress-inducing. In this world where money rules all----whether it be a lack or an abundance thereof----many of us suffer while caught in the wheels.
What is a middle-class professional American to do? Embrace what is, put best foot forward, and try to do more than simply survive. If work is such a central aspect of identity and purpose, then make those hours count.
Short of that, plan vacation and early retirement.
Saturday, April 01, 2006
Now the dueling laptops are at it again, Mary blogging on Zaadz (a new progressive on-line community which is growing exponentially).
My current mental state of relaxation is somewhat knocked off-kilter by increasing chronic back and leg pain for which treatment has been slow to materialize. The symptoms have been slowly increasing over the last few years, to the point where my chiropractor and I are actually discussing whether a diagnosis of myofascial pain syndrome may be accurate. The next step is clueing in my new Internist about this ongoing struggle, and perhaps seeking further work-up. At 41, I already live with major depression, gastroesophageal reflux disease, hyperlipidemia, and newly-diagnosed benign prostatic hypertrophy. I never think of myself as a patient, really, but this growing list of chronic conditions is leading to a realization that that characterization is quite accurate. Thus, the concept of "Healer, heal thyself"---as my wife intoned today---takes prominence in my mind.
Examining the back pain which I am experiencing presently, I realize that if any of my patients had such pain, they would be on the phone requesting help, many pushing for narcotics. While I do occasionally take one of Mary's Fioricets (ssshhhh, don't tell!) when it's really bad, I mainly stick with naproxen, ibuprofen, occasional Arnica Montana, and regular chiropractic care and irregular deep tissue massage, not to mention exercise and rest. I have a hard time seeing myself as chronically ill, but, in another circumstance and context, it might be possible to define me in that way, and that, dear Reader, is a frightening thought.
But I digress. The weekend brings with it not only spring-like rain and fickle weather, but the end of Daylight Savings Time, meaning that tomorrow the sun will miraculously go down at 8pm, the length of the day gloriously lengthened for our pleasure (and Vitamin-D-producing benefit). I will earnestly try to keep the dread of Sunday night at bay, instead focusing on the here and now, the loveliness of the early spring, the freedom of the silent alarm clock, the proximity of my love, and the knowledge that the weekend's gifts cannot be erased by the arrival of Monday. Back pain be damned, home sweet home is sweet indeed, be I patient or healer.